Establishing a Regional Registry for Neonatal Encephalopathy: Impact on Identification of Gaps in Practice

Neonatal encephalopathy (NE) continues to be a significant risk for death and disability. To address this risk, regional guidelines and a neonatal encephalopathy registry were developed with the support of CRICO and its Academic Medical Center Patient Safety Organization.

This CRICO-funded study, published in the Pediatric Research journal, helped to demonstrate that a registry can reduce variations in practice in the treatment of NE and hasten the adoption of quality improvement interventions. The tools used in the study have been made publicly available to replicate this project.

Full-text Citation

El-Dib M, El-Shibiny H, Walsh B, Cherkerzian S, Boulanger J, Bates SV, Culic I, Gupta M, Hansen A, Herzberg E, Joung K, Keohane C, Patrizi S, Soul JS, Inder T; CRICO Neonatal Encephalopathy Registry. Establishing a regional registry for neonatal encephalopathy: impact on identification of gaps in practice. Pediatric Research. 2023 Aug 8. doi: 10.1038/s41390-023-02763-3. Epub ahead of print. 

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