Caregivers as Patients:
Transforming Personal Experiences into Better Care

Wednesday, April 25, 2007, 5:30 - 7 PM

Sponsoredy by CRICO/RMF, The Kenneth B. Schwartz Center, Massachusetts Medical Society

The Inn at Longwood Medical - Longwood Hall
342 Longwood Avenue
Boston, Massachusetts

Panelists and Biographies

Panelists
Rosanna F. DeMarco, PhD, APRN, BC, ACRN
Associate Professor
William F. Connell School of Nursing at Boston College

Susan Edgman-Levitan, PA
Executive Director, John D. Stoeckle Center for Primary Care Innovation,
Massachusetts General Hospital, Boston, MA

Fredric Frigoletto, Jr., MD
Associate Chief, MGH Vincent Obstetrics and Gynecology Service,
Massachusetts General Hospital, Boston, MA

Paula O'Connor, MD
Medical Director, Tarceva, Genentech, Inc.

Facilitator
Richard Bohmer, MD, MPH
The MBA Class of 1973 Senior Lecturer of Business Administration at the Harvard Business School

 

Richard M.J. Bohmer, MD, MBA
MBA Class of 1973 Senior Lecturer of Business Administration
Richard M.J. Bohmer is a physician and the MBA Class of 1973 Senior Lecturer of Business Administration at the Harvard Business School, in the Technology and Operations (TOM) unit. He teaches a second year course on health care operations management, "Managing Medicine," which discusses the design, management and improvement of the processes by which patients are medically treated. He co-directs the MD-MBA program and teaches a course at Harvard Medical School on medical management.

His research has focused on health care operations strategy, technology adoption in health care, patient safety, clinical process management and clinical quality improvement. Central to his teaching and research is the principle that health care delivery requires different types of process, each of which must be managed in a different way. Professor Bohmer has written on learning, technology adoption and health care operations strategy in the medical and management literatures and published numerous cases on health care operations management. In 2004 he was a member of the Institute of Medicine committee that produced the report “Saving Women’s Lives: Strategies for Improving Breast Cancer Detection and Diagnosis.”

Rosanna F. DeMarco, PhD, APRN, BC, ACRN
Dr. DeMarco is Associate Professor at William F. Connell School of Nursing at Boston College (CSON).  She is a community health clinical nurse specialist, researcher and associate professor at CSON whose program of scholarship includes the study of  women, marginalization, and health behaviors with special emphasis on the concept and outcome measure of "silencing the self" in African American women living with HIV, African American teen girls at risk, and nurses in the workplace. She has a 10-year history of funded research in these areas and has over 30 publications in national and international practice and research journals.

Dr. DeMarco has always been interested in population-based health and prevention of illness especially with women experiencing life threatening illness. She co-produced an HIV prevention intervention film called Women’s Voices Women’s Lives© after developing a seven year relationship with African American women at risk or living with HIV in Boston. The film features four HIV+ women talking about their experiences living with HIV and is considered a prevention intervention tool for teens and women. It is also a teaching tool for healthcare providers. The film has been adopted by AIDS service agencies (ASOs) through the AIDS Bureau of the Massachusetts Department of Health and in over 50 ASOs across the United States. The film was just translated in Vietnamese language for use in that country.
 
In the context of this professional work, she was diagnosed with Stage IIIA ovarian cancer in June of 1999 at a routine annual physical with no obvious symptoms. After receiving surgery and chemotherapy, she has not had a recurrence since that time. It was this cancer survivorship experience that brought her to conduct and publish research funded by the Schwartz Center with two other nurse colleagues about the experience of being a healthcare professional as well as a cancer survivor. Twenty-five nurse cancer survivors were interviewed and the findings were published in one of the most respected oncology refereed journals in nursing called Oncology Nursing Forum, entitled: A Foot in Two Worlds: The Personal and Professional in 2004.

Paula O’ Connor, MD
Dr. O’Connor is Medical Director for Genentech, Inc. in San Francisco, CA.  Her activities at Genentech have been in the post-marketing and development areas.

As a member and subsequent leader of the post-marketing teams for Rituxan and Tarceva, her activities include(d) phase IV trial monitoring, disease registry development, management of the ISD program, interacting with consultants, clinical and commercial advisory board development and conduct, evaluation of outside drug candidates, sales force education, and medical science liaison training.

Participation on project teams and close interaction with Regulatory Affairs, Biometrics, Safety, and Commercial teams are integral components of the position; as is participation on the Publications and Product Review Committees. Among the activities performed on these committees is the review and co-authorship of manuscripts and presentations including the following abstracts:

  • “Autologous Bone marrow transplant with monoclonal antibody plus complement “purged” bone marrow for high risk non-Hodgkin’s lymphoma; low transplant related mortality.”
  • “Quality of life following bone marrow transplantation: A comparative study.”
  • “Impaired antigen processing and presentation by KSHV infected cells.”
  • “Reproducible identification of KSHV specific cytotoxic T-lymphocytes (CTL) using the elispot assay.”

Her development activities on the Tarceva team include registration trial development and monitoring, reporting to upper management, investigator/site and team education.

Fredric D. Frigoletto Jr., M.D.
Fredric D. Frigoletto Jr., M.D. is Associate Chief of Obstetrics and Gynecology at the Massachusetts General Hospital and The Charles & Robert Montraville Green Professor of Obstetrics and Gynecology at Harvard Medical School. After more than 25 years of service at the Brigham & Women’s Hospital he accepted the position of Chief of Obstetrics at the MGH in 1993 to reestablish the Vincent Obstetrical Service.

Dr. Frigoletto is a member of a number of National Organizations dedicated to Obstetrics and Gynecology and served as President of The American College of Obstetricians and Gynecologists from 1996 to 1997. He is presently a member of the Secretary's Advisory Committee on Infant Mortality and chairs the scientific advisory committee, National March of Dimes, on Prevention of Prematurity. Dr Frigoletto has published over 200 scientific peer reviewed articles, books, and abstracts.

Dr. Frigoletto’s interests have been in perinatal medicine, perinatal diagnosis, and ultrasound imaging in pregnancy. His current interests include the development of clinical care models that deliver the highest possible quality, safest, accessible, patient oriented clinical care.

Susan Edgman-Levitan, PA
Susan Edgman-Levitan is Executive Director of the John D. Stoeckle Center for Primary Care Innovation at Massachusetts General Hospital. Prior to coming to MGH, she was the founding President of the Picker Institute. She is a Lecturer in the Department of Medicine, Massachusetts General Hospital and an Associate in Health Policy, Harvard Medical School.

A constant advocate of understanding the patient's perspective on healthcare, Susan has been the co-principal investigator on the Harvard Consumer Assessment of Health Plans Study (CAHPS) study from 1995 to the present. She has served as Chair of the Institute for Healthcare Improvement's (IHI) Breakthrough Series Collaborative on Improving Service Quality, and is the IHI Fellow for Patient and Family-Centered Care. She is an editor of Through the Patient's Eyes, a book on creating and sustaining patient centered care, The CAHPS Improvement Guide, and has authored many papers and other publications on patient-centered care. She serves on several boards and has co-chaired the Annual NPSF Congress on Patient Safety since 2002. Ms. Edgman-Levitan is a graduate of the University of Michigan and the Duke University Physician Assistant program where she received the Distinguished Alumni award from the Duke Physician Assistant Program and was inducted into the Duke University Medical Center Hall of Fame in 2004. She lives in Chestnut Hill, MA with her husband, Richard, and daughter, Amelia.